Understanding the Challenges of Aging with Cerebral Palsy

As a Physiotherapist who works with a lot of patients suffering from Cerebral Palsy, it is important to note that there are certain considerations that need to be considered. Cerebral Palsy is a lifelong condition that affects millions of people globally. Even though it is often diagnosed during early childhood, its effects can extend into adulthood, particularly as patients age. In this article, we will explore the unique challenges that people with Cerebral Palsy face as they grow older and some strategies that can help them lead fulfilling and healthy lives, based on our experience at Aevum Health.

The Physical Challenges of Aging with Cerebral Palsy

Our physical function and capacity decline with age. People with CP often experience a decline in physical function, including decreased muscle strength and flexibility in joint range of motion at a slightly higher rate. This can make it more difficult for them to perform daily activities and can increase their risk of falls and injuries. In addition, individuals with CP may also experience joint pain, contractures, and other physical health problems that can be exacerbated by aging. To mitigate these challenges, people with CP must maintain an active lifestyle and engage in physical therapy and exercise to help preserve their strength and mobility. Regular check-ups with a doctor or physical therapist can also help identify and address any physical health issues before they become serious problems.

The Psychological Challenges of Aging with Cerebral Palsy

In addition to the physical challenges of aging with CP, individuals may also face psychological and emotional challenges. For example, they may experience depression, anxiety, and feelings of isolation as they age. This can be due in part to the decline in physical function, as well as the social stigma associated with disability. To address these challenges, people with CP should have access to mental health services and support networks. Talking to a therapist, participating in support groups, and engaging in leisure activities can help improve mental health and well-being.

Access to Quality Healthcare

Access to quality healthcare is essential for individuals with CP as they age. Regular check-ups with a doctor or specialist can help identify and address any physical or mental health issues and ensure that individuals receive the medical care they need. In addition, individuals with CP may also need assistance with managing their medications and therapies. This can include help with filling prescriptions, tracking medication schedules, and ensuring that treatments are effective. Having a care team knowledgeable about CP and its effects on aging can be extremely beneficial in ensuring that individuals receive the best possible care.

Planning for the Future

As individuals with CP age, it is important to plan for their future needs, including financial security, housing, and healthcare. This can include creating a will, establishing a trust, and making decisions about long-term care. Working with a financial advisor or estate planning attorney can help those with CP make informed decisions about their future and ensure their needs are met. In addition, exploring options for accessible and supportive housing can help individuals with CP live independently for as long as possible.

Frequently Asked Questions

Here, we look to answer some common questions patients ask our physiotherapy team.

What are the physical challenges of aging with Cerebral Palsy?

As individuals with CP age, they often experience a decline in physical function, such as decreased muscle strength and flexibility. This can make daily activities difficult and increase the risk of falls and injuries. They may also experience joint pain, contractures, and other physical health problems that aging can exacerbate.

What can be done to mitigate the physical challenges of aging with CP?

To mitigate these challenges, individuals with CP must maintain an active lifestyle and engage in physiotherapy and exercise to help preserve their strength and mobility. We want to assess the individual's specific needs and then tailor a program specifically to address these needs.

What are the psychological challenges of aging with Cerebral Palsy?

Individuals with CP may experience depression, anxiety, and feelings of isolation as they age due to the decline in physical function and the social stigma associated with disability. To address these challenges, it is important to have access to mental health services and support networks, such as talking to a therapist, participating in support groups, and engaging in leisure activities. Your NDIS support co-ordinator should be able to help you find the best services for you.

Can I access the NDIS with a diagnosis of CP?

The NDIS has been designed to establish the individual's needs and derive the support needed to address these needs. So yes, you most certainly can, and it’s important to start sooner rather than later to get the support in place early. A care team knowledgeable about CP and its effects on aging can be extremely beneficial in ensuring the best possible care.

What should be considered when planning for the future for individuals with CP?

As people with CP age, it is important to plan for their future needs, including financial security, housing, and healthcare. This can include creating a will, establishing a trust, and making decisions about long-term care. Working with a financial advisor or estate planning attorney can help ensure their needs are met and they can live independently for as long as possible.